When I first moved to New Orleans I was fresh out of college and fumbling my way through becoming a special education teacher. I knew I wanted to do right by my students and that meant leaning in and learning more than I ever could have imagined about disability, more specifically, disability justice.
I turned to my favorite corner of the internet, Bookstagram, where I found thoughtful, passionate, and kind disabled readers that shared books, resources, and lived experiences with me. Without Bookstagram and the fantastic community of disabled readers I definitely would not be where I am in my journey with disability justice (always have room to grow though)!
Below are some books that have shaped my learning around disability justice that I’d highly recommend you check out all year long 🙂
Disability Visibility: First-Person Stories from the Twenty-First Century
This is always my go-to rec, especially if you’re new to disability justice!
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent–but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act.
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Year of the Tiger: An Activist’s Life by Alice Wong
A fantastic memoir from one of my favorite and most beloved disabled activists, Alice Wong is an incredible force and I’m thankful to be alive in her lifetime.
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong.
Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her thoughts on creativity, access, power, care, the pandemic, mortality, and the future. As a self-described disabled oracle, Alice traces her origins, tells her story, and creates a space for disabled people to be in conversation with one another and the world. Filled with incisive wit, joy, and rage, Wong’s Year of the Tiger will galvanize readers with big cat energy.
Sipping Dom Pérignon Through a Straw: Reimagining Success as a Disabled Achiever by Eddie Ndopu
If you’re looking for a disabled memoir that really displays the ways in which academia is ableist and classist then you’re going to want to check this one out! Highly recommend it on audio!
A memoir penned with one good finger, Ndopu writes about being profoundly disabled and profoundly successful.
Global humanitarian Eddie Ndopu was born with spinal muscular atrophy, a rare degenerative motor neuron disease affecting his mobility. He was told that he wouldn’t live beyond age five and yet, Ndopu thrived. He grew up loving pop music, lip syncing the latest hits, and watching The Bold and the Beautiful for the haute couture, and was the only wheelchair user at his school, where he flourished academically. By his late teens, he had become a sought-after speaker, traveling the world to address audiences about disability justice.
Ndopu was ecstatic when he was later accepted on a full scholarship into one of the world’s most prestigious schools, Oxford University. But he soon learns that it’s not just the medical community he must thwart– it’s the educational one too.
In Sipping Dom Pérignon Through a Straw, we follow Ndopu, sporting his oversized, bejeweled sunglasses, as he scales the mountain of success, only to find exclusion, discrimination, and neglect waiting for him on the other side. Like every other student, Ndopu tries to keep up appearances–dashing to and from his public policy lectures before meeting for cocktails with his squad, all while campaigning to become student body president. Privately, however, Ndopu faces obstacles that are all too familiar to people with disabilities, yet remain unnoticed by most people. With the revolving door of care aides, hefty bills, and a lack of support from the university, Ndopu feels alienated by his environment. As he soars professionally, sipping champagne with world leaders, he continues to feel the loneliness and pressure of being the only one in the room. Determined to carve out his place in the world, he must challenge bias at the highest echelons of power and prestige. But as the pressure mounts, Ndopu must find his stride or collapse under the crushing weight of ableism.
This evocative, searing, and vulnerable prose will leave you spellbound by Ndopu’s remarkable journey to reach beyond ableism, reminding us of our own capacity for resilience.
Sitting Pretty: The View from My Ordinary Resilient Disabled Body by Rebekah Taussig
My favorite/ best read of 2023. Rebekah’s writing is concise, unapologetic, and she tackles the struggles of teaching disability justice to young people– something that really resonated with me as I used to be a special education teacher.
Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.
Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.
Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.
This year, I’m challenging myself to read more nonfiction and I’ve made a challenge creatively called the ‘Layne’s 2024 Big Brain Reading Challenge.’ Below are the disability justice books on my list, feel free to play along with me and pick up some of these books in 2024.
Disability Pride: Dispatches from a Post-ADA World by Ben Mattlin
There Plant Eyes: A Personal and Cultural History of Blindness by M. Leona Godin
Black Disability Politics by Sami Schalk
Crip Kinship: The Disability Justice & Art Activism of Sins Invalid by Shayda Kafai
Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha
All Our Families: Disability Lineage and the Future of Kinship by Jennifer Natalya Fink
A literary omnivore and influential Bookstagrammer, Layne applies her vivid creativity for every title we promote by deftly coordinating news coverage and events for authors, writing and editing diverse content for social media, and assisting with Books Forward’s social media engagement initiatives.
As a former special education teacher, Layne firmly believes in the importance of literature and accessibility. This unique point of view is an asset in her publicity efforts as she works to reach readers across various platforms and demographics.
Layne received her Bachelors of Arts in Creative Writing and Bachelors of Science in Psychology from Virginia Polytechnic Institute and State University, and her Masters of Art in Teaching from Relay Graduate School of Education. She lives in New Orleans with her loyal, but sadly illiterate cat, Macaroni.
Charlie likes to stand out. She’s a vlogger and actress promoting her first movie at SupaCon, and this is her chance to show fans she’s over her public breakup with co-star Reese Ryan. When internet-famous cool-girl actress Alyssa Huntington arrives as a surprise guest, it seems Charlie’s long-time crush on her isn’t as one-sided as she thought. Taylor likes to blend in. Her brain is wired differently, making her fear change. And there’s one thing in her life she knows will never change: her friendship with her best guy friend Jamie — no matter how much she may secretly want it to. But when she hears about a fan contest for her favorite fandom, she starts to rethink her rules on playing it safe.
Eve Brown is a certified hot mess. No matter how hard she strives to do right, her life always goes horribly wrong. So she’s given up trying. But when her personal brand of chaos ruins an expensive wedding (someone had to liberate those poor doves), her parents draw the line. It’s time for Eve to grow up and prove herself–even though she’s not entirely sure how… Jacob Wayne is in control. Always. The bed and breakfast owner’s on a mission to dominate the hospitality industry and he expects nothing less than perfection. So when a purple-haired tornado of a woman turns up out of the blue to interview for his open chef position, he tells her the brutal truth: not a chance in hell. Then she hits him with her car–supposedly by accident. Yeah, right. Now his arm is broken, his B&B is understaffed, and the dangerously unpredictable Eve is fluttering around, trying to help. Before long, she’s infiltrated his work, his kitchen–and his spare bedroom. Jacob hates everything about it. Or rather, he should. Sunny, chaotic Eve is his natural-born nemesis, but the longer these two enemies spend in close quarters, the more their animosity turns into something else. Like Eve, the heat between them is impossible to ignore… and it’s melting Jacob’s frosty exterior.
Opposites become allies to fool their matchmaking friends in this swoony reimagining of Shakespeare’s beloved comedy, Much Ado About Nothing. Jamie Westenberg and Bea Wilmot have nothing in common except a meet-disaster and the mutual understanding that they couldn’t be more wrong for each other. But when the people closest to them play Cupid and trick them into going on a date, Jamie and Bea realize they have something else in common after all–an undeniable need for revenge. Soon their plan is in place: Fake date obnoxiously and convince the meddlers they’re madly in love. Then, break up spectacularly and dash everyone’s hopes, putting an end to the matchmaking madness once and for all. To convince everyone that they’ve fallen for each other, Jamie and Bea will have to nail the performance of their lives. But as their final act nears and playing lovers becomes easier than not, they begin to wonder: What if Cupid’s arrow wasn’t so off the mark? And what if two wrongs do make a right?
But you’d never know it by looking at her. To keep the family safe, Min’s mother insists that none of them use any fox-magic, such as Charm or shape-shifting. They must appear human at all times. Min feels hemmed in by the household rules and resents the endless chores, the cousins who crowd her, and the aunties who judge her. She would like nothing more than to escape Jinju, her neglected, dust-ridden, and impoverished planet. She’s counting the days until she can follow her older brother, Jun, into the Space Forces and see more of the Thousand Worlds.
In this queer contemporary YA mystery, a nonbinary autistic teen realizes they must not only solve a 30-year-old mystery but also face the demons lurking in their past in order to live a satisfying life. Sam Sylvester has long collected stories of half-lived lives — of kids who died before they turned nineteen. Sam was almost one of those kids. Now, as Sam’s own nineteenth birthday approaches, their recent near-death experience haunts them. They’re certain they don’t have much time left… But Sam’s life seems to be on the upswing after meeting several new friends and a potential love interest in Shep, their next-door neighbor. Yet the past keeps roaring back — in Sam’s memories and in the form of a thirty-year-old suspicious death that took place in Sam’s new home. Sam can’t resist trying to find out more about the kid who died and who now seems to guide their investigation. When Sam starts receiving threatening notes, they know they’re on the path to uncovering a murderer. But are they digging through the past or digging their own future grave?
Sixteen-year-old trans boy Benji is on the run from the cult that raised him — the fundamentalist sect that unleashed Armageddon and decimated the world’s population. Desperately, he searches for a place where the cult can’t get their hands on him, or more importantly, on the bioweapon they infected him with. But when cornered by monsters born from the destruction, Benji is rescued by a group of teens from the local Acheson LGBTQ+ Center, affectionately known as the ALC. The ALC’s leader, Nick, is gorgeous, autistic, and a deadly shot, and he knows Benji’s darkest secret: the cult’s bioweapon is mutating him into a monster deadly enough to wipe humanity from the earth once and for all. Still, Nick offers Benji shelter among his ragtag group of queer teens, as long as Benji can control the monster and use its power to defend the ALC. Eager to belong, Benji accepts Nick’s terms…until he discovers the ALC’s mysterious leader has a hidden agenda, and more than a few secrets of his own. Perfect for fans of Gideon the Ninth and Annihilation.
Zoe Kelly is starting a new phase of her life. High school was a mess of bullying and autistic masking that left her burnt out and shut down. Now, with an internship at an online media company—the first step on the road to her dream writing career—she is ready to reinvent herself. But she didn’t count on returning to her awkward and all-too-recent high-school experiences for her first writing assignment. When her piece, about her non-existent dating life, goes viral, eighteen-year-old Zoe is overwhelmed and more than a little surprised by the response. But, with a deadline and a list of romantic contenders from the past to reconnect with for her piece on dating, she is hoping one of her old sparks will turn into a new flame.
Five friends take a trip to a cabin. It’s supposed to be one last getaway before going their separate ways—a chance to say goodbye to each other, and to the game they’ve been playing for the past three years. But they’re all dealing with their own demons, and they’re all hiding secrets. And as they start to play the murder mystery game that brought them together in the first place, the lines between the game and reality blend, with deadly consequences. Someone knows their secrets. Someone wants to make them pay. Soon, it’s a race against time before it’s game over—forever. Are you ready to play?
Sixteen years ago, a plague wiped out nearly all of humanity. The Company’s vaccine stopped the virus’s spread, but society was irrevocably changed. Those remaining live behind impenetrable city walls, taking daily doses of virus suppressant and relying on The Company for continued protection. They don’t realize that everything they’ve been told is a lie… Clover Donovan didn’t set out to start a revolution–quiet, autistic, and brilliant, she’s always followed the rules. But that was before they forced her into service for the Time Mariners. Before they condemned her brother to death, compelling him to flee the city to survive. Before she discovered terrifying secrets about The Company. Clover and the Freaks, her ragtag resistance group, are doing their best to spread the rebellion and stay under The Company’s radar. But when their hideout is discovered, they are forced, once again, to run. Only this time, The Company has special plans for Clover, plans that could risk her life and stop the uprising in its tracks…
Autistic scientist Yasira Shien has developed a radical new energy drive that could change the future of humanity. But when she activates it, reality warps, destroying the space station and everyone aboard. The AI Gods who rule the galaxy declare her work heretical, and Yasira is abducted by their agents. Instead of simply executing her, they offer mercy — if she’ll help them hunt down a bigger target: her own mysterious, vanished mentor. With her homeworld’s fate in the balance, Yasira must choose who to trust: the gods and their ruthless post-human angels, or the rebel scientist whose unorthodox mathematics could turn her world inside out.
January 29, 2035: That’s the day the comet is scheduled to hit–the big one. Denise and her mother and sister, Iris, have been assigned to a temporary shelter outside their hometown of Amsterdam to wait out the blast, but Iris is nowhere to be found, and at the rate Denise’s drug-addicted mother is going, they’ll never reach the shelter in time. A last-minute meeting leads them to something better than a temporary shelter–a generation ship, scheduled to leave Earth behind to colonize new worlds after the comet hits. But everyone on the ship has been chosen because of their usefulness. Denise is autistic and fears that she’ll never be allowed to stay. Can she obtain a spot before the ship takes flight? What about her mother and sister? When the future of the human race is at stake, whose lives matter most?
Christopher John Francis Boone knows all the countries of the world and their capitals and every prime number up to 7,057. He relates well to animals but has no understanding of human emotions. He cannot stand to be touched. And he detests the color yellow.
Around 1 in 100 people in the UK are autistic, but rarely do autistic people have a voice. They are the ones on the daytime tv sofas, in parliament, or writing about their experiences with us. While these voices are important, the balance is tipped, and rarely do we get to use our own voices to talk about our experiences or to show how creative, smart and funny we are, how different from the stereotype most people have. This anthology represents an important step in reclaiming that power, of using our own voices. This book will bring together some of the best autistic writers, showcasing the immense talents of people who just happen to be on the spectrum. It won’t just feature essays about what it is to be autistic, but also stories, illustrations and art. So this isn’t just a book for autistic people or those who work or live with us; Stim will be an enjoyable, insightful collection for people around the world, who want to discover and champion unheard voices.
Written by autistic trans people from around the world, this vital and intimate collection of personal essays reveals the struggles and joys of living at the intersection of neurodivergence and gender diversity. Weaving memories, poems and first-person narratives together, these stories showcase experiences of coming out, college and university life, accessing healthcare, physical transition, friendships and relationships, sexuality, pregnancy, parenting, and late life self-discovery, to reveal a rich and varied tapestry of life lived on the spectrums. With humour and personal insight, this anthology is essential reading for autistic trans people, and the professionals supporting them, as well as anyone interested in the nuances of autism and gender identity.
For every visibly Autistic person you meet, there are countless “masked” Autistic people who pass as neurotypical. Masking is a common coping mechanism in which Autistic people hide their identifiably Autistic traits in order to fit in with societal norms, adopting a superficial personality at the expense of their mental health. This can include suppressing harmless stims, papering over communication challenges by presenting as unassuming and mild-mannered, and forcing themselves into situations that cause severe anxiety, all so they aren’t seen as needy or “odd.”
Autism — that’s being able to count matches really fast and knowing that 7 August 1984 was a Tuesday, right? Well, no. In this book, Bianca Toeps explains in great detail what life is like when you’re autistic. She does this by looking at what science says about autism (and why some theories can go straight in the bin), but also by telling her own story and interviewing other people with autism. Bianca talks in a refreshing and sometimes hilarious way about different situations autistic people encounter in daily life. She has some useful tips for non-autistic people too: what you should do if someone prefers not to look you in the eye, why it is sometimes better to communicate by email, and, most important of all, why it is not a compliment if you say: “But you don’t look autistic at all!”
How To Be Autistic charts Charlotte Amelia Poe’s journey through schooldays and young adulthood, with chapters on food, fandom, depression, body piercing, comic conventions, and technology. Poe writes about her memoir: ‘The best way to describe it is to imagine a road trip. If a neurotypical person wants to get from A to B, then they will most often find their way unobstructed, without road works or diversions. For an autistic person, they will find that they are having to use back roads and cut across fields and explore places neurotypicals would never even imagine visiting’. How To Be Autistic challenges narratives of autism as something to be ‘fixed’, as Poe believes her autism is a fundamental aspect of her work. She writes: ‘I wanted to show the side of autism that I have lived through, the side you don’t find in books and on Facebook groups. My piece is a story about survival, fear and, finally, hope. It is an open letter to every autistic person who has suffered verbal, mental or physical abuse and come out snarling and alive. ‘If I can change just one person’s perceptions, if I can help one person with autism feel like they’re less alone, then this will all be worth it. So please, turn the page. Our worlds are about to collide.’
Providing advice on how professionals working with autistic trans youth and adults can tailor their practice to best serve their clients and how parents can support their trans autistic children, this book increases awareness of the large overlap between trans identities and autism. By including chapters on gender diversity basics, neuroqueer trauma and how to support neuroqueer individuals, this book sets out strategies for creating more effective support that takes into account the unique experiences of trans people on the spectrum. Written by a therapist who identifies as neuroqueer, this book is the perfect companion for professionals who want to increase their knowledge of the experiences and needs of their trans autistic clients.
